Coordinate and provide focused nursing care in an ambulatory care setting for pediatric and adult patients and families for the University of Michigan Hemophilia and Coagulation Disorders program.
Active participation in collaborative problem solving with multidisciplinary teams across practice settings and the continuum of care both within and external to Michigan Medicine.
Support and provide patient care in the clinic setting inclusive of patient and family education and care coordination, teaching families how to administer factor therapies, and administering therapies as needed.
Develop and implement educational materials, standards, methods, and tools to improve patient care.
Acts on behalf of patients and families to ensure care that is safe and appropriate with consideration for values, diversity, and human rights. Highly motivated patient advocate.
Provides telephone management which includes triage of calls from patients, caregivers, clinicians, and other healthcare team members.
Participate in quality improvement initiatives at the institutional, local, state, regional, national, and/or international level.
Provide education to relevant representatives from community agencies and school leaders.
Liaise with other professional organizations to ensure compliance with program specific requirements.
Assist with patient eligibility determination for active and new research studies.
Collaborate with research coordination team with responsibilities such as collection of data, coordination of lab draws, and the IRB process.
Assist with maintenance of accurate record keeping, surveillance, and quality improvement initiatives supporting grant application, research studies, and surveillance projects.
Maintain a high level of professional conduct with minimal direct supervision.
Note: This position is funded through grant funding.